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Commentary: Religious perspectives on Precision Medicine in Singapore

Annex A: List of workshop participants No

. Organization Designation

1 Singapore Buddhist Federation Chairman of General Affairs 2 National Council of Churches of

Singapore Lecturer in Systematic Theology,

Trinity Theological College 3 National Council of Churches of

Singapore Lecturer in Systematic Theology,

Trinity Theological College 4 Catholic Church of Singapore Priest/Spiritual Director 5 Caritas Singapore Special Projects Executive

6 Catholic Medical Guild Immediate Past Master, Catholic Medical Guild

7 Ramakrishna Mission President

8 Hindu Centre Committee Member (Research &

Publications)

9 Hindu Centre Advisor to Education Committee and Hinduism Teacher

10 Jaafari Muslim Association

Singapore President

11 Jaafari Muslim Association

Singapore Honorary Secretariat

12 Islamic Religious Council of

Singapore (Muis) Senior Executive, Office of the Mufti (Research)

13 Islamic Religious Council of

Singapore (Muis) Executive, Office of the Mufti (Religious Policy)

14 Sikh Advisory Board Chairman

15 Young Sikh Association

(Singapore) President

16 Sikh Welfare Council Vice Chairman 17 Taoist Mission (Singapore) Secretary-General 18 Taoist Mission (Singapore) Vice President

19 Taoist Federation Priest

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Commentary: Religious perspectives on Precision Medicine in Singapore Annex B: Workshop handout

HANDOUT: PRECISION MEDICINE RELIGIOUS WORKSHOP Thursday 1st October 4.00pm - 5.30pm

Host: Prof. Tamra Lysaght (Centre for Biomedical Ethics, National University of Singapore)

Questions: Please contact Toh Hui Jin medthj@nus.edu.sg [+65- 9172 4814].

The purpose of this workshop is to help us better understand what perspectives, if any, religious authorities in Singapore have about precision medicine, specifically with respect to data-sharing with private industry and commercial partners.

We aim to address the following questions during the workshop, time permitting:

• Are there any concerns in general with a programme that gathers genome sequence data from your followers, links it to their electronic medical record and de-identifies it for use in research (with their consent)?

• What, if anything, would you advise your followers if they were to ask about being recruiting onto this type of programme?

• What, if any, value do you see in such a programme?

• Are there any concerns you would have about de-identified data from your followers being shared with private industry for precision medicine?

Private industry may include:

 Pharmaceutical and biotech companies

 Tech companies (e.g. Google)

 Private health insurers

• What, if anything, would you advise your followers if they were to ask about being recruited onto a programme that will allow private industry/commercial partners to access the data?

• What, if any, value do you see in sharing health data with private industry?

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