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Maria Schwarz

Maria Schwarz - - Woelzl Woelzl Zentrum fuer Soziale Zentrum fuer Soziale Innovation Innovation

Workshop:

Workshop:

Informal carers in Europe Informal carers in Europe Coimbra, October 2009 Coimbra, October 2009

Caring for family Caring for family

carers carers

Policies, Services and Policies, Services and

Recommendations Recommendations

Presentation of research Presentation of research

findings findings

May May – – August 2009 August 2009

(2)

Aim of WP2 research Aim of WP2 research

To shed light on the challenges for the family care support system, with focus on Austria, Austria Italy, Italy PortugalPortugal andand Spain;Spain The overall guiding question of this report is how family carers can be best supported in their outstanding

contribution to society.

Specifically, the aims of the study are to:

discuss why the issue of the family care has to find recognition on policy debate here and now;

explore the socio-economic profile and situation of family carers;

examine the existing approaches and services for family carers and the carers’ satisfaction with these reliefs;

provide examples of good practice and/or innovative approaches

(3)

Definitions Definitions

Family carers Family carers

Is not referred to child care and not to child care paid care work;paid

But to: “who look after family, partners or friends in need of help because they are ill, frail or have any disabilities. The care that they provide is unpaidunpaid.” (Eurocarers)

Informal caregivers Informal caregivers

undeclared or illegal

undeclared or illegal long term carer workers, who might receive a salary

salary

Long Term Care / LTC Long Term Care / LTC

a range of services for persons who are dependent on help with basic activities of daily living over an extended period of time

to persons with physical or mental handicaps, the frail elderly and particular groups that need support in conducting their daily life activities (OECD)

(4)

Family

Family care care on on the the top top of EC of EC policy policy agenda agenda

In 2005, EU Member States agreed on the commitment to

“accessible, high-quality and

sustainable health care and long-term care by ensuring:

access for all

access for all, to adequate health and long-term care and that the need for care does not lead to poverty and poverty and

financial dependency

financial dependency; and that inequities in access to care and in health outcomes are addressed

In 2007, European ministers of employment and

social affairs declared it a top priority to support

family care in a message to their heads of state.

(5)

National LTC Systems National LTC Systems

Home or community care is preferred to institutional care throughout Europe;

The EC 2009 recommends:

Austria

Austria should improve the access to information, guidance and training for family carers

Italy

Italy should improve the efficiency by means of a more rational use of resources; focusing on community and home services by moving towards an integrated

approach between regional and local levels Portugal

Portugal should eenhance the provision of LTC and reducing geographical disparities

Spain

Spain should enhance the provision of LTC and counter regional disparities

(6)

Trend toward care provided Trend toward care provided

by (undocumented) migrant care workers by (undocumented) migrant care workers

Reasons:

Feminisation of the labour market

Increase of number of persons to be cared (ageing population)

Restructuring of the welfare state systems Changing family structures (mobility, single households

No meaningful, comparable data found in terms of number, qualification, levels of training

Significant number of EU-research projects in

this field

(7)

Family carers

Family carers - - Facts and figures Facts and figures

100 million carers in EU25, 25% of citizens Value of their efforts exceeds countries’

spending on formal care

Mostly women (60 to 77%), mean age is 55 years

1/3 care of older AND for someone younger (“sandwich generation”)

19 millions (6% of population) care at least 20 hours per week (in 2005)

Of these, 24% were aged 65+

(8)

Average caring period lasts 60 months, (47 month in Germany, 70 months in Poland) 59% are non-working in gainful work

More than half feel “trapped” in care, feel isolated, report worse emotional well-being Motives: love, affection, duty religious

motives, lack of alternatives (50% of carers)

Family carers

Family carers - - Facts and figures Facts and figures

(9)

Countries comparison Countries comparison

Number of family carers

Austria

Austria: 6.7% of adult population, 2/5 are in paid work

Italy

Italy: 11% of 50+ population

Portugal

Portugal: 2.3% of total population

Spain

Spain: 12.4% of all households, 21% of total population

Time used for caring

Austria

Austria: ½ of carers spend 5 to 15 hours /week, ¼ more than 15 hours/ week

Italy

Italy: housewives: 15.4 hours, public employed: 7.7 hours, private employed: 8.5 hours

Portugal

Portugal: 68.3% of family cares: more than 4 hours/day

Spain

Spain: 56% on daily basis, 22% care every week, average: 7 hours/ day

(10)

Employment patterns:

Austria

Austria: 55% are not on the labour market, 43%

are employed, ¼ have cut back or abandoned gainful work

Italy

Italy: 50% are not working on full time basis, 60%

are dissatisfied with their economic situation Portugal

Portugal: no data available Spain

Spain: 22% are employed, 50% are housewives, 12% have stopped working

Countries comparison

Countries comparison

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Reliefs for family carers Reliefs for family carers

may encompass several stakeholders financial benefits

focus on the reduction of the carers’ financial burdens: carer allowances, payments of income

during care leave, tax and pension credits, available to people in paid jobs and/or to inactive caregivers are measures supporting carers financially

Non-financial benefits

such as respite care, care leave and counselling:

reduce the psychological and physical burdens

(12)

Reliefs for family carers Reliefs for family carers

Less than 1/3 of carers had used any support services Lack of information, low quality, inadequate coverage, distribution problems (rural areas)

50% of EU-citizens were satisfied with public support were unsatisfied (Portugal: 40% are not at all satisfied)

Policies focusing on the labour market participation

Possibility of part time work, short time leaves Should consider the specific needs of women Should set incentives for men

(13)

Reliefs for family carers Reliefs for family carers

Policies focusing on securing the provision of care

modularisation of professional care services respite care and day care centres

information and counselling services, & care

techniques, health aspects, information on how to organise work and health

Policies focusing on cost control of care

The assessment of policy proposals often

reaches the conclusion that family care is less

costly than institutional care, however ignoring

the wage loss and expected losses regarding the

carer’s pension rights.

(14)

Your are warmly invited to give Your are warmly invited to give

feedback to the report feedback to the report

Thank you very much for your attention!

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