Article Title: Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients
Journal Name: The Patient - Patient-Centered Outcomes Research
Authors: Valerie Umaefulam1, Terri-Lynn Fox2, Glen Hazlewood1,3, Nick Bansback4, Claire E.H. Barber1,3, Cheryl Barnabe1,3
1 Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
2 Research assistant and patient
3 Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
4 Centre for Health Evaluation and Outcome Sciences at St. Paul’s Hospital and University of British Columbia, Vancouver, British Columbia, Canada and Arthritis Research Canada, Richmond, British Columbia, Canada
C Barnabe (corresponding author), Email: ccbarnab@ucalgary.ca ORCID: 0000-0003-3761-237X
Online Resource 1: Interview Guide
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1. In general, what did you like or not like about this document?
a. Is it organized? Do you find anything confusing? Did you understand it?
2. Do you think that this document would be useful when considering a decision about making arthritis treatment decisions?
a. In your opinion, does the tool address the right topics that concern you? Is it asking the right questions? Is anything missing?
3. We will now go through each section on the form.
a. What do you think about the different sections (DMARDs, Benefits, Risks, Lifestyle). Do you feel the information in these sections (s) makes sense? If a concern is raised: What do you like/not like? What would you change?
4. Thinking about other Indigenous people living with arthritis, do you have any other comments or suggestions that we should consider that would make the tool easier to use?
a. Particular topics, format, layout, wording, images/pictures.
b. Would you be more likely to use this in paper form? In electronic format?
5. Do you think this tool could be useful for making decisions about arthritis care?
a. Would it help you to make a decision that you think is good?
b. Explain choice options? Clarify the benefits and harms of the different options? Describes the possibility that the benefits or harms might happen?
6. Would you be willing to try using the tool to make a decision? Why or why not?
a. Would you be comfortable using this on your own? Would you prefer to walk through the options with a decision coach?
7. Do you have any other general comments about the tool? Is there anything else that you would like to say about this tool? When you look at this tool, what comes to mind?
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