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Die Bezugsperson als Stresspuffer: Emotionsregulation und ID. Presenter: Prof. dr. Paula Sterkenburg

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Die Bezugsperson als Stresspuffer:

Emotionsregulation und ID

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WAS MACHT SIE GLÜCKLICH?

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WAS MACHT SIE GLÜCKLICH?

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MRT- Untersuchung einer Frau

1) Mit ihrem Partner, der ihre Hand hält

2) Mit einem Fremden 3) Alleine

Coan, (2011). Adult attachment and the brain. Journal of Social and

WARUM SIND HERZLICHE UND FÜRSORGLICHE

BEZIEHUNGEN SO WICHTIG?

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WARUM SIND HERZLICHE UND FÜRSORGLICHE BEZIEHUNGEN SO WICHTIG?

Wichtige andere Menschen:

- Helfen bei der Stressregulation - Man erlebt selbst weniger

Stress, da Andere bei Bedarf helfen werden

- Eine fürsorgliche Beziehung

bringt Menschen zurück auf ein

ausgewogenes Stresslevel

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SOCIALE BASELINE-THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A B

C D

Ein für die Sicherheit wichtiger

anderer Mensch

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SOCIALE BASELINE THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A B

C

D

Gut bekannte andere Person

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SOCIALE BASELINE THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A

B

C

Unbekannte Person D

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SOCIALE BASELINE THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A B

C

D

Keine andere Person / alleine

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SOCIALE BASELINE THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A B

C D

Auffälliges Verhalten/

challenging behaviour

xCLIP275.MPG

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SOCIALE BASELINE THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A

B

C

D

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SOCIALE BASELINE THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A B

C D

DDClip611.mpg

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SOCIALE BASELINE THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A

B

C

D

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SOCIALE BASELINE THEORIE

Gefahr

A

B C D

Wachsamkeit wird ausgelagert

A B

C D

xCLIP630.MPG

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PFLEGEPOLITIK IN DEN NIEDERLANDEN

Gesetz in den Niederlanden – 2020

„Zorg en dwang“/ «Pflege und Zwang»

„Nein, es sei denn“

Das bedeutet, dass

Freiheitseinschränkungen oder

unfreiwillige Pflege grundsätzlich

nicht angewendet werden dürfen,

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FREIHEITSEINSCHRÄNKUNGEN REDUZIEREN- WIE?

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CO-REGULATION

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VON DER CO-REGULATION ZUR SELBST-REGULATION

Hilfe bei der Regulation

Eine warmherzige Beziehung

aufbauen

Sichere, vorhersehbare

Routinen und Tagesabläufe

Strukturierung der Umgebung

Eine mentalisierende Haltung modellieren und

unterstützen

Selbstregulations- fähigkeiten lehren /

coachen

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SICHERE, V ORHERSEHBARE ROUTINEN

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TAGESAKTIVITÄTEN

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EINBLICK IN STRESS ERHALTEN

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Sense - a biofeedback system to support the interaction between parents and their child with the Prader-Willi syndrome: a pilot study

Kyra Frederiks

a

, Misha Croes

a

, Wei Chen

a

, Sidarto Bambang Oetomo

a,b

and Paula Sterkenburg

c

a Industrial Design Department, Eindhoven University of Technology, the Netherlands

b Neonatal Intensive Care Unit, Department of Pediatrics, Máxima Medical Center, Veldhoven, the Netherlands

c Clinical Child and Family Studies Department, VU University Amsterdam, the Netherlands k.frederiks@student.tue.nl, m.j.g.croes@tue.nl, w.chen@tue.nl, S.BambangOetomo@mmc.nl, p.s.sterkenburg@vu.nl

Address: Technische Universiteit Eindhoven, P.O. Box 513, 5600MB Eindhoven

Abstract. Parents of children with the Prader-Willi syndrome have shown to experience difficulties in interpreting their child’s signals and experience a lack of interest from their child, which causes a risk for a disrupted bonding process between the child and his or her parents. Evidence suggests that this is mainly due to the fact that these children are excessively sleepy, hardly cry and express movement to a lesser extent. In this paper an intelligent biofeedback system is proposed to support parents in their interaction with their child. The proposed system – called Sense – uses a galvanic skin response sensor to monitor the child’s arousal response and visually communicates this to the parents. A prototype of the system is created and evaluated with users. Furthermore, thirteen tests are carried out with Prader-Willi patients to validate whether the galvanic skin response sensor provides a meaningful output signal for the system. The results from the tests show that galvanic skin response is a valuable biofeedback source to provide more information about the child’s emotions and reaction to the environment. As a result of evaluating the intelligent system, parents expect Sense will improve the interaction and bonding between parents and their child with the Prader-Willi syndrome.

Keywords: Prader-Willi syndrome, biofeedback system, smart environment, stimulating interaction, bonding

1. I ntroduction Prader-Willi syndrome

The Prader-Willi syndrome (PWS) is a genetically determined neurodevelopmental disorder, first discovered in 1956 by Prader, Labhart and Willi [1-3] The estimated prevalence is 1/10.000-1/25.000 births [4-6] and occurs in both sexes and in all races [7]. PWS is characterized by

chromosome 15 within the q11–13 region [10,11].

This loss of expression results in 70% of individuals with PWS from a deletion on the paternal chromosome [11,12]. Two types of deletion exist:

Type I (breakpoint BP1 to BP3) and Type II (breakpoint BP2 to BP3) [4,12]. Studies indicate that there are small differences between Type I and Type II. Children with Type I have poorer adaptive behavior, intellectual abilities and academic achievement than children with Type II [4,11].

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BINDUNGSAUFBAU

Empfindsam

Empathisch

Offen,

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DEN STRESS BEWÄLTIGEN

CHAOS

_________________________________

INTEGRATION

Rigidität

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DEN STRESS BEWÄLTIGEN

CHAOS

__________________________________

INTEGRATION

_________________________________

RIGIDITÄT

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SELBST - REGULATION

Stimulieren Sie die Mentalität und

Stressregulation durch ein Spiel

„Du & ich“ für

Erwachsene mit

ID (IQ 50-85)

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SICHERE BEZIHUNGEN ZU ANDEREN

Integrative Therapie für Bindung und Verhalten

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SENSIBLES PFLEGEN UND BETZREUEN

Mehr Wissen über einfühlsame und reaktionsschnelle

Betreuung von Eltern und

Betreuern durch Multiple-

Choice-Fragen

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facebook.com/EMBenICT/ & facebook.com/sociaalict www.EMBenICT.nl / www.socialerelatiesenict.nl

p.s.sterkenburg@vu.nl / psterkenburg@bartimeus.nl

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Weitere Informationen finden Sie unter:

https://research.vu.nl/en/persons/paula-sterkenburg

Sterkenburg PS, & Vacaru VS. The effectiveness of a serious game to enhance empathy for care workers for people with disabilities: a parallel randomized controlled trial. Disabil Health J. 2018;11:576–582.

Van Wingerden, E., Wouda, M., & Sterkenburg, P. (2019). Effectiveness of m-learning HiSense APP-ID in

enhancing knowledge, empathy, and self-efficacy in caregivers of persons with intellectual disabilities: a

randomized controlled trial. Health and Technology.

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